Row Baby 2

Row Baby 2 Inspiring gifts for babies, moms, and nurses. Original artwork inspired by my NICU warrior.

My sweet Row Baby had his 5th birthday party last weekend and seeing this kid running around with his friends and smilin...
04/23/2024

My sweet Row Baby had his 5th birthday party last weekend and seeing this kid running around with his friends and smiling SO BIG was the best. He officially turns 5 on Friday and is no longer a little toddler. He’s a big kid and I can’t handle it. I love him so much it hurts. 🎈🥳💙

Rowan had his second biopsy done this morning. Justin was here last night with Rowan so he could have fluids overnight. ...
04/01/2024

Rowan had his second biopsy done this morning. Justin was here last night with Rowan so he could have fluids overnight. It took 4 pokes and two doses of versed to try to calm him a bit to be able to get the IV. They are getting worse to do and more traumatic for all of us so we hope this is the last hospital stay we will have for a while to give him a break from all of this.

The good news is that the biopsy is CLEAR/ NORMAL! That means no more infection in his kidney and no rejection!! 🥳 We are still waiting for the antibody results to see what those look like but as of now we are in the clear and his kidney is happy. Thank God and thank you for all of your prayers and support. Just have to lay flat in the hospital for 10 hours to allow for healing at his biopsy sight and prevent bleeding and then we should be able to head home 💙

First of all, I’m obsessed with this photo because Rowan is obsessed with this little yellow sweater that I made in coll...
02/25/2024

First of all, I’m obsessed with this photo because Rowan is obsessed with this little yellow sweater that I made in college and now my baby is wearing it and it feels like a full circle moment 🥹

Second, we got a call last week from our nephrology team that the yearly post-transplant labs showed that Rowan’s body has created two antibodies against his transplanted kidney. Because of this, Rowan will have to be admitted in Cincinnati tomorrow night for a biopsy of his kidney to rule out rejection. They don’t suspect rejection with the info they have right now but if these antibodies aren’t treated, they would attack his kidney. After the biopsy, Rowan has to have 4 rounds of two different IV meds for four weeks in a row. So he will have one round this Monday/ Tuesday while he is admitted and then will have to go back to Cincinnati’s infusion center for one day every week for three additional weeks. They said the infusions could take anywhere from 4-8 hours so they are all day visits.

I didn’t share this on Thursday when I got the call because I had to process it first. We haven’t really had a huge scare or issue with Rowan’s kidney or transplant labs until now so it was just so unexpected. We’re counting our blessings that Rowan is at least healthy right now and that we caught this before the point of it being severe, but there are still a lot of unknowns at this point. And I’m also terrified for an admission and 4 weeks straight of getting IVs for Rowan, who is already traumatized just by regular blood draws.

I hate that my baby has to go through this. He has to miss out on going to school with his friends. He has to be stuck inside on monitors. He can’t just run around at home on a weekend with no plans like a normal kid. It’s always something. Don’t get me wrong, I’m SO grateful that he is healthy enough to be home most of the time and to be able to go to school and do sports, etc. I’m SO grateful that we have an amazing team of doctors who are doing what they can to keep this kidney healthy. I just wish I could take some of the pain and fear for him.

Please pray for no rejection and that the IV meds completely get rid of the two antibodies. 💙

I’m so happy to share that together,  ,  , and our amazing NICU mom group was able to put together 200 care packages for...
02/25/2024

I’m so happy to share that together, , , and our amazing NICU mom group was able to put together 200 care packages for NICU families! We dropped off 100 of them to hospital and 100 to Toledo hospital. Thank you to everyone who donated, bought off of our wishlist, dropped items off, and helped organize and pack the bags. You helped us bring joy to so many families who are on some very difficult journeys and I couldn’t be more proud 💖 And thank you and for bringing this group together and working so hard to support other NICU families! 🥰

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Waterville, OH

Website

http://www.RowBaby.com/

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