02/25/2024
First of all, I’m obsessed with this photo because Rowan is obsessed with this little yellow sweater that I made in college and now my baby is wearing it and it feels like a full circle moment 🥹
Second, we got a call last week from our nephrology team that the yearly post-transplant labs showed that Rowan’s body has created two antibodies against his transplanted kidney. Because of this, Rowan will have to be admitted in Cincinnati tomorrow night for a biopsy of his kidney to rule out rejection. They don’t suspect rejection with the info they have right now but if these antibodies aren’t treated, they would attack his kidney. After the biopsy, Rowan has to have 4 rounds of two different IV meds for four weeks in a row. So he will have one round this Monday/ Tuesday while he is admitted and then will have to go back to Cincinnati’s infusion center for one day every week for three additional weeks. They said the infusions could take anywhere from 4-8 hours so they are all day visits.
I didn’t share this on Thursday when I got the call because I had to process it first. We haven’t really had a huge scare or issue with Rowan’s kidney or transplant labs until now so it was just so unexpected. We’re counting our blessings that Rowan is at least healthy right now and that we caught this before the point of it being severe, but there are still a lot of unknowns at this point. And I’m also terrified for an admission and 4 weeks straight of getting IVs for Rowan, who is already traumatized just by regular blood draws.
I hate that my baby has to go through this. He has to miss out on going to school with his friends. He has to be stuck inside on monitors. He can’t just run around at home on a weekend with no plans like a normal kid. It’s always something. Don’t get me wrong, I’m SO grateful that he is healthy enough to be home most of the time and to be able to go to school and do sports, etc. I’m SO grateful that we have an amazing team of doctors who are doing what they can to keep this kidney healthy. I just wish I could take some of the pain and fear for him.
Please pray for no rejection and that the IV meds completely get rid of the two antibodies. 💙