07/21/2023
Shout out to an amazing nonprofit The Butterfly Family Fund who help families with children with Epidermolysis Bullosa, or EB. Those with EB are often referred to as butterfly children because their skin is as fragile as butterfly wings. Any kind of bumping or friction makes their skin blister or shear off. This impacts many other organs including the mouth, eyes, esophagus and stomach. It is known as the worst disease you never heard of and for good reason. The Butterfly Family Fund is a place for kids to be kids and caregivers to feel cared for. They offer support to families that suffer in a way that no one should ever have to. https://www.facebook.com/thebutterflyfamilyfund?mibextid=LQQJ4d
At The Butterfly Family Fund, we are dedicated to supporting caregivers and families living with Epidermolysis Bullosa, while empowering and inspiring a life of wellness.
Our mission is simple. Our mission is to do something to make life with EB better.
