08/29/2022
I just realized I never really introduced my girls, the “why” and namesake behind Lenny and Lux!
These are my twins, Lennon Vera and Emery Lux. Emery is the silly blonde, she is a wild child, and her daddy’s girl through and through! She loves all things motorcycles, helping her daddy detail his cars and dirtbike, and she loves a good bug hunt. She sings CONSTANTLY, and knows more words than any 3 year old I’ve ever Met. (No joke, yesterday she told me I “need to stay hydrated.” Like..: what?)
Lennon is truly one in a billion, she has an extremely rare genetic disorder that only about 15 other people in the world have. It is a “de novo” gene mutation, meaning it was a random change, and not something that was passed down from us. It’s called CAMK2B, and it affects every area of her development. she is nonverbal, legally blind (cortical visual impairment) and cannot sit up, crawl, or walk. She currently is meeting most 6 month old development milestones, but she may never progress any farther than that. So little is known about her condition, that we have no idea what to expect for her future, really!
Lenny and Lux was originally started as a bow shop when my girls were teeny tiny, because I couldn’t stop making bows for them! But now that they’re a little older, a little busier, and keeping bows on them is nearly impossible, so I switched over to making shirts, and it her crafts instead!