05/26/2022
The month of May is Ehlers Danlos awareness month. During the remainder of May and into part of June a portion of all purchases will be donated to the Ehlers Danlos Society. This is a cause that is very important to our CEO/ founder Lexi.
“It is so important to me to spread awareness about EDS because it is listed as a rare genetic connective tissue disorder that not many medical professionals know how to help you manage it let alone even know what EDS is. Connective tissue makes up your body by being able to hold things together, it is nearly everywhere (joints, ligaments, skin, eyes, heart, brain, GI tract, blood vessel walls, etc.) Our connective tissue is looser allowing us to move our joints far past the normal range and motion. Typically EDS doesn’t come alone, other diseases/ illness are typically linked with EDS are dysautonomia, gastroparesis, MCAS, and so many others! This does not mean everyone who has EDS has all of these other illnesses, it just means they are more common for people who have EDS. Due to this being a rare chronic illness as of June 2021 there were less than 1% of donations and 0 grants for EDS research. This has to change, we suffer daily with some kind of joint pain whether it’s a minimal pain or a major pain we experience some sort of pain daily. Most of us can go through the entire day and bystanders not have any idea we are in the amount of pain we really are. EDS is an invisible illness so to the naked eye you would never even know we are actually suffering. I want to help be the change in providing more research to be spent on EDS, how it affects our bodies, awareness of it, and better ways to manage our pain and symptoms, so during the remainder of the month of May and into part of June, a portion of all purchases will go to the EDS Society to allow the research team and lab in the Carolina’s to continue having funds to provide more information about EDS.”
