21/06/2017
"I spent a normal childhood, the boy who once used to swim, dance and go out to play as all kids his age would. That was till I reached 9th grade when I started experiencing pain in my legs. Walking till the bus stand to catch the school bus became a tedious task.
My parents thought maybe I have vitamin D deficiency so they kept on taking me to bone doctors but things were getting worse for me. Then one day my brother took me to some hospital where just for fun and curiosity I took a blood pressure check-up there and they found out that my BP was very high. Then the worry period started and after a lot of checkups it was finally diagnosed I was suffering from Wilson’s – a disease in which copper enzymes begin to collect first in the liver and then in the brain, causing neurological problems. And this disease is very rare and has a ratio of 1 is to 1 lakh. Which is why due to lack of knowledge in doctors the dosage did not reach me properly and so within the next month, I was confined to bed, unable to move a limb, speak, eat or drink for almost a year.
Not to be pinned down by adversity, in spite of poor motor functions and other debilitating symptoms,my parents continued my studies and called a home-tutor. I was the first child in cbse boards exam who gave his 12th standard exams on laptop and by God’s grace scored 84% in that condition. After 12th, I had a wish to go to college as my school life was ruined due to the disease and as my motor function was getting better. I went ahead and finally got admission in Sri Guru Gobind Singh College of Commerce, Delhi university on a wheelchair.
While in college I joined a society called Jagriti, which was working for differently-abled students to make their life easier while in college. Though I was in the society for them to help me in my daily college fuses but it turned out that I started helping other differently abled students. I started participating in every activity I could inside or outside Jagriti. Within 2 years, I was promoted as vice president of the society, which was a big achievement for me. Besides Jagriti, in my daily & my college life my teachers, my family, my friends, every person I knew gave me so much love and support which motivated me to improve and they were the ones who brought light in my life. After my college was finished I thought that all the love and support I got was not in the fortune of all, so I thought that I should repay society in some way or other but I didn’t know where to start and that’s when I met Mohit Ahuja, founder of Bikers for Good. He proposed me to participate in a social awareness event which was related to my disease and without any hesitation, I said yes to him. We held a fairly large event, which was a success and I became a known face to the bikers’. They called me an inspiration and that day paved the way for many more initiatives that I became a part of.
That event since then has been a yearly ritual that I follow. Apart from that, I have worked as an individual and also collaborated with different groups and Non-Profit Organizations to fulfill my aim to give back to the society.
I have also worked with UMEED and took action against the abuse and violence that animals face. The initiative was called . I also travelled to Agra to meet the beautiful young women working at SHEROS Café, all of them being Acid attack survivors and donated a sum there. My family and I donate quilts to the needy every winter as well. I have worked alongside organizations like Tickled Pink which took kids fighting with cancer to a fun picnic and gave them one memorable day, Each One Teach One, the initiative by Deepak Jhangra, where they provide kids with basic amenities for school and makes sure that no one is left behind.
I have been also a chief guest at Dance for Kindness. I still want to keep pursuing this passion and keep giving back to the society.
I also love photography and getting clicked too so for that I joined Delhi College of Photography to be pro in photography. And I have been photographing most of the social events I go to.
During this period in my journey I have got few stares by people in life, few who said things like “hayehaye bechara” but they have never stopped me from living my life the way I want to. I go to travel alone, I hang out with friends, have drinks, and go for bike rides ,do every thing that makes me happy.
My physical appearance might be bit different from others but I have done and achieved much more then a normal being.
Because no matter however you look, you are always going to be remembered for what you have done.
So be yourself and smile in every situation in life, that’s what I do. :)"
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