19/08/2026
Sorry for the radio silence, everyone. I wanted to wait until I had some concrete updates to share.
I had my lumbar puncture on the 5th of August, which turned into a total nightmare. The doctor doing it seemed nice enough at first, but after hitting bone twice, he tried to draw fluid on the third attempt—only he wasn't even in the right spot. It hurt so much that I told him he had to stop and take the needle out. He then claimed he couldn’t do it and actually wrote on my notes that I had refused the procedure! The nurse wasn’t impressed, and neither was I.
After avoiding me for three hours, the nurse made him come speak to me. His excuse for failing? Apparently, I’m "not a slim frame" 😆🙄. A formal complaint has definitely been made.
Meanwhile, the fluid buildup in my neck is really bad and my symptoms are getting worse. Tests that were supposed to take a week dragged out for four weeks. After my latest appointment, I was referred for an emergency MRI and an X-ray-guided lumbar puncture, which was supposed to happen within seven days. I chased them up today and managed to snag a cancellation for an MRI tomorrow morning at 9:15 AM.
This scan should clarify whether it’s a CSF leak or if we're still looking at hydrocephalus—both of which will require surgery. I should know more by tomorrow or Friday and will keep you posted.
On a brighter note, I am still fully planning on travelling to Ukraine at the end of September. I have something very important to do there—it’s a surprise, and I can’t wait!
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