29/05/2026
Autoimmune liver disease and liver cancer are truly some of the cruellest diseases anyone can face.
If sharing our journey can help even one person find the support, treatment, or answers they need, then it’s worth it. If you’ve been told there are no options left, or you feel like you’ve reached a dead end, please don’t give up. We are always happy to share our experience and point people in the direction of help that could make a difference.
What I struggle to understand is why so many people are left suffering for so long, often becoming critically ill before being given a life-saving opportunity such as a liver transplant. There are people out there who need help, and there are often more options than they realise.
The NHS is doing important work through ongoing trials, and had James been diagnosed correctly from the beginning, he may have been eligible for one of them. But I truly believe everything happens for a reason, and our journey led us to the incredible team in Istanbul who gave us hope when we needed it most.
At the same time, I want to say how incredibly grateful we are for the care we are receiving now through the NHS. The aftercare from the Royal Free has been nothing short of amazing, and we are so thankful for the support, expertise, and compassion we’ve received throughout this stage of our journey.
We’ve been living this reality for around 12 years now. For so long, very few people knew what was happening behind the scenes, and now everyone knows. It’s been an emotional roller coaster filled with heartbreak, fear, hope, gratitude, and resilience.
To everyone affected by autoimmune liver disease, liver cancer, or the transplant journey, we are sending you so much love and strength. Please keep fighting. There is always hope. ❤️
