12/03/2021
Hey everyone!
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So today’s post is a little different to the norm but it’s something so very special to me & I want other people to know!
Three years ago today I made the decision for my little chappy to have 2/3 cranial remodelling after being diagnosed at 6 months with saggital craniosynostosis! (Early fusion of the sutures on the top part of his skull)
Oliver’s case was on the milder side but still very daunting as a new mum - all his tests always came back that his brain was fully functioning, his eye sight was as expected for his age & the op would be purely ‘cosmetic’. I pushed forward & went ahead with the op at 18months old as something was telling me I needed to do this for him! It was the longest 5 hours of my life but when his surgery team came back to update me whilst oliver was in recovery, they told me they’d surprisingly found pressure on his brain which hadn’t shown up on his latest tests so I knew right then I had no regrets with the surgery!
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They don’t know what causes sagittal craniosynostosis specifically but below I’ve added a link to website where ollie was looked after & continues to be for check ups! I’m truly grateful for his amazing team of specialists 🙏🏻🙌🏼
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If anyone is going through this journey or knows someone who is & would like someone to speak to I’m here! The one thing I struggled with was finding people or families who’d gone through the same! I’ve since found two support groups on Facebook one in the uk & one in the states!
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https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/sagittal-craniosynostosis/