16/02/2026
The for real real/why I barely design now:
Having an emotional disability caring for a child with a disability is not something to plan on. You just survive, then break down, then get up and do it again.
I share all the cute stuff, but life isnāt easy for this girl. More issues are popping up and itās heartbreaking. Her anxiety has gone through the roof over the past couple months. We have an appointment with a local developmental pediatrician in early April
Anxiety and possibly other things are interfering with her daily life and Iām scrambling to get help for her. Sheās still not potty trained and I think itās a lack of proprioception (body awareness) and laser focus on activities.
She still really struggles in school. Academically sheās super gifted and in GT, but sheās severely held back with her behaviors and socially. No real friends at school. She loves friends one on one, but in groups she gets overstimulated and runs around. Getting upset and eloping from class. Crying (I hear her in the hallway at school).
Iām now looking into occupational therapy to help her start recognizing body cues. She gets upset whenever I make her change after accidents. So many doctors either donāt accept insurance or donāt accept her dadās weird plan. I canāt even talk to the insurance cause itās through her dad and heās always so overwhelmed with his own life that getting HIM to do that stuff is darn near impossible.
Thereās been lots of tears from both Valerie and I and itās justā¦so hard. We are definitely struggling right now. IDK how Iād get through this without my partnerās support. Heās my rock. Sometimes you can go it alone, but when things are hard you need support.